Showing posts with label Special needs children. Show all posts
Showing posts with label Special needs children. Show all posts

Sunday, March 3, 2013

February 2013 Newsletter

Hello family and friends,

Sveta and I enjoyed a couple of weeks of snow, but now the 35F plus weather has brought the rain. Snow may return before spring arrives, but it will not stay long here by the Black Sea. The weather changes most unpredictably. Sveta is moving my residency documents along quickly, as my Visa D will expire February 21. Life is good.

The Christmas Fundraiser has made it possible for the computer program to begin this month at the Dobromel Orphanage for special needs children. We are so pleased that we are able to offer the  children massage therapy that began last January, and computer classes this year. We look forward to hearing and seeing the progress results. We have talked with the director of the orphanage, and he is very grateful. We pass this note of thanks on to you, the sponsors.

The sewing machine for the Marganets Orphange will be delivered this month. Sveta will order through the internet, it will be delivered to a shipping company in Marganets, and our manager there, Anatoliy, will pay for it and deliver it to the orphanage. Cash on delivery is quite common in Ukraine, and gives me considerable peace of mind because I don’t have to worry about my debit card being compromised. On another front, we provided the transition home in Marganets with one washing machine. I will share the rest of the washing machine story in the March Newsletter.

I want to share a story with you about one of my special children. D. was born with Cerebral Palsy. She began to receive medical attention at the age of two, which is the old Soviet mentality. I met her when she was four years old. Palsy affected her legs and feet, but she used all the muscles in her body when she would try to walk. Her inability to balance caused her to fall to one side or the other. It would soon be time for her to begin kindergarten, and then school. To do this, she would need to be able to walk on her own, maneuvering through her day independently.

Sveta and I met with her at a massage therapy session in the fall of last year. She was eight, and is winning her battle. She attends school, is walking independently, and is very happy. Her challenges will continue until she stops growing, but she works very hard combating her muscle imbalance and spasticity. I have assembled a video of her therapy and her triumphs. Take five minutes and cheer her on as you watch how far she has come.  D's Video

Sveta has some wonderful stories to share this month. Our massage therapists keep us in-touch with the progress of the children through progress reports. In Illichevsk, at the end of sessions, they invite us to take pictures and video the children, displaying their new abilities.


Sveta’s Journey

Yesterday Mark and I visited a new child; this is our first visit to him. His name is G. and he is five months old. Two months ago, he received  his first treatment of ten massages. Now Tanya, one of our massage therapists, is giving him a second ten-day massage treatment. Immediately from the first days of treatment, Tanya and his mother noticed improvements in G. -- relaxation of tense muscles in his neck and back, now G. can turn his head to either side. Before the massage he could only turn his head to one side.

G., things are looking up!
 After the second treatment of massage, the spasticity in his right arm and leg diminished considerably. Some questionable movement in his left hand remains. We will watch as massages and special exercise may improve the operation and development of the muscles and give direction to the proper growth of the skeletal system. The problem is much easier and faster to fix in infancy than when the child is older. (I'm not talking about an extremely serious diagnosis. If a child receives massage early, the results will be greater, but if massage comes later for the child, it will take more time and more work to come close to the before mentioned results, if they will at all.)

A., is a sweet baby girl who was adopted by a lovely family. Her new parents are very caring toward their child, take good care of her, and have much patience with her. They need to work hard to help her develop properly in her body and mind. A. is one year and four months old, but she cannot walk like most children at her age. Doctors diagnosed her: mental retardation and spastic syndrome. She received her first twenty-day massage last month. These are the results that Tanya and A.’s mother saw. The girl began to crawl. 
A. says,"Ok, I'm ready!
She can stand without adult support for about one minute.Now she can get off the bed by herself and she began to speak the word "mama." When we met in the massage room, the mom enthusiastically told us what the girl is now able to do. The mother glowed with happiness. A. will have the next massage course after a month. Patience and love are winning. This is only the first step. She needs to continue to work with the muscles of her body to develop into a healthy child.

K. - Mmmm, thaaat feeels gooood!
Little K. has regularly received massage treatment from when she was eight months old; now she is two years old. Doctors and parents did not immediately find a problem in her physical development so the massage was started a little late, but even this did not interfere with the results. Before the massage, a big difference was evident; one cheek on her face was large and the other was smaller. Now, both of K.’s cheeks look the same. The muscles on the left side of her neck are shorter, causing stiff neck. Now she turns her head to either side. Tanya continues to work with K. and focuses on the left side of the body, relaxing spastic muscles of the arm and leg.

I described three children who had massages in a very short time, but received great results. All three mothers told us what their children’s problems were before the first massage, and how happy they are now, seeing such excellent results. We were also very happy with them. For me they were real miracles; whenever I see or hear about the results after the massage, my heart is filled with joy for these children and their parents. These are not the end-results; our massage therapist will continue to work with these children until our goals are met.

Living my dream,

Sveta

We are so grateful for all of your interest in our children and the love that you have for them. Your financial gifts and prayers make all of what we do here possible. Without MUCH, the children with special need, those in orphanages, and the poor wanting to attend higher eduction would be forgotten, or their needs minimized to a survival status. As you can see on the right toward the top, we have six programs that fall into three major categories. In March we will talk about the transportation scholarship program. We will give details of what is happening now and what our goals are. Until then, may God bless you and fill your lives with joy and prosperity.

Blessings of love and healing,

Mark and Sveta



Tuesday, January 29, 2013

January 2013 Newsletter


Hello family and friends,

Happy New Year 2013! Our Christmas fundraiser this year fell short of our total goal, but we will be able to operate the computer classes for the complete goal of one and a half years. 
Learning will be eciting for us!
 
We (picture to the right) are very excited about that! The remainder of the funds raised will go toward the massage therapy programs at Dobromel and Froonza that will continue from last year. A second part-time massage therapist for the Dobromel orphanage may be possible in the future, if we can find more monthly sponsors.

MUCH had two surprises this Christmas. After reading our November Newsletter, friends from North Carolina offered to buy a sewing machine for the orphanage-school in Marganets. When the assistant director heard this news, she was very pleased. The children will be thrilled with all of the mechanized options that they will be able to use. They will even be able to sew in script to personalize their projects!

The second surprise involves a church, a mission organization, and a new sponsor. Between the three of them, money was contributed to buy two new washing machines for the Transition Home in Marganets. The director and the washwomen were very pleased to receive these machines because they had been washing clothes and bedding for 30 children by hand.

After our two month fundraising and holiday time, Sveta and I have returned to Ukraine exhausted, but we will begin this year with a new perspective on Ukraine. Sveta's first visit to America did yield culture shock for her. For me, I saw America through her eyes, which in turn, helped me to see Ukraine with new eyes. After ten years, the cultural differences and the visual effects have become very "normal" for me. When I would visit America in the past, my world, my perspective, was only bigger. Now, seeing through Sveta's eyes, I see two different worlds.

Our time in America was constant mental activity. Thanksgiving, Christmas, New Years, my niece's wedding, and family visits kept us busy. Then, there were the many sponsors that we visited and the presentations that we gave. Sveta's one year of studying English proved to be very successful. She spoke in front of large groups without hesitation. Her Ukrainian perspective of MUCH gave them new understanding of our work with the children.

Additional stress visited us in the last few days of our journey. My passport was at the Ukrainian Embassy in Washington DC, waiting for a Visa D to be attached. When I called, I learned that I had sent the wrong amount of money, too much, and they couldn't accept the postal money order. Mom sent another while Sveta and I were out of town, but the adventure heightened as we tracked the return express mail envelope. After great efforts by two gracious postal workers, (unbelievable in Sveta's eyes), the envelope was available to be picked up at 7AM the morning that we were to fly back to Ukraine.

My heart sank as I opened my passport to learn that I had only 45 days on my Visa D. I later learned that this is normal under the new law. The second step is to register with the government office for a one-year Visa D in the city where I live and work. After I get this, my next step will be to apply for full time residency, not citizenship, as the spouse of Sveta, a Ukrainian national. This will be available after we are married two years, January 10, 2014.

Our next adventure met us at the JFK International Airport. Our connecting flights to Odessa included two stops in European Union countries, Germany and Austria. This was not a problem for me, carrying an American passport. On the other hand, Sveta had a Ukrainian passport; therefore, she needed a Schengen Visa to fly into more than one EU airport. The clerk at the Austrian Air desk was able to give us two options for flights that would go directly from JFK to Vienna where we could connect with our final flight. We were blessed with the first option, standby tickets for a 6PM flight that would leave in two hours, and a $316 change fee, versus a $1016 change fee for a flight the next day. As we waited patiently, we were invited to the 6PM flight. On we went.

Our focus in 2013 will be to create videos of the work that we do with the children, particularly in the massage therapy programs. These videos will be available to view by way of the internet or a number of our sites, such as Flickr, YouTube, our blog, Facebook, and Twitter. The massage therapy video that I made for the presentations on our trip opened new eyes of understanding for many people.

Sveta's Journey

Our two-month trip to America is over, we returned to Ukraine, and of course, I am very glad to see my family and friends in Ukraine. I was a little sad that I had to leave my wonderful new family and friends in America; they gave us attention, love, and support. I enjoyed socializing with people; I saw a lot of care and a desire to give us their valuable time. I was bathed in love.

After talking to people and reviewing what they saw, I learned and saw many differences in their culture and way of life. First of all, I was very impressed with the people. They were very welcoming, friendly, discreet, ready to help, and to encourage. I did not feel lonely or outcast in this new culture; I felt the love and acceptance in a great family where there is love.

Today it is considered that the experience of a new culture is a shock, because it is unexpected and can lead to negative evaluation of one's own culture. I do not appreciate my Ukrainian culture in a negative manor. I love my country, and God has put love in my heart to help Ukrainian women and men of retiring age when Mark and I retire. We will help them find hope for the future, because it is usually the time when the Post-Soviet people retire to a meaningless life. Children are grown, the grandchildren are adults, and they have no work or hobbies. There is no further purpose in life, having completed all previous goals (attending university, having a good job, a family, a baby, raising grandchildren) the people are at a loss - how to live on?

Mark and I are thinking about the time when we will retire. We want to help these people regain confidence that life can be rich and fruitful, even after the person has retired. We already have a plan to do it. While in America, I saw a perfect example of people in the retirement age having an active and productive life.

All the people we met in America were eager to know about the children in the orphanage. I know many stories because I know many of the children. Each child has their own unique story; they have experience with big blows of fate for their young age.

I finished school, now it's on to trade school
R. (to my right) is a boy from the Dobromel orphanage. He looks older than his years. Maybe it is because he was found on the street many years ago when he was a little boy. He could not say his name, age, or give any information on who his parents were. R. was given his name by the boarding school, along with some created identity where they recorded the year of his birth. Police were looking for a long time to find his family, but did not find anything. The boy is an orphan only in words. Because of the lack of true documents, he cannot have the financial help benefits of being an orphan, as there is no proof of the death of his parents, or their rejection of this child.

Please pray about my future
Last autumn, R. (to my right) finished boarding school and now attends trade school as a builder. He lives in a dorm and gets a very small $30 monthly stipend. Since the law does not considered him for an orphan pension pensioner, after he finishes all of his education, he will no longer be entitled to the stipend, much less any other government aid. The director asked us to help him. We know a Christian family that has experience working with children and helping them adapt to life after the orphanage. We think that they will help R.

Visual stimulation and massage are changing my life

K., (left) 7 years old, has cerebral palsy. He can say only one word "mama". K. has respectable parents, but they are very busy and very seldom visited the child, and of course, the boy misses them and has become very closed. When the massage therapist gave massage for him, the first few days he was very stressed and did not want to be touched. Now K. is gradually beginning to open up and blossom like a flower that was drooping for a long time without water.

Computers will help us with our language skills.
Two brothers, I. and P. (right) are special. I love them very much. When Mark and I come to the orphanage, the elder brother is always beside us; the youngest brother is shy and follows us at a distance of several meters. They cannot speak well. Their parents are alcoholics. When it is vacation time, parents take these boys home, but it is really better for them to stay at the boarding school. The boys told me they do not like their mom, and they do not like to be at home.


Every adult has a destiny that he can change. Children are dependent on their parents or other adults who are involved in their lives, whether positive or negative. Particularly dependent are the children with physical and mental limitations. These children have little ability to change their own destiny, but their parents or other adults in their lives may have big influence on their future.

Thank you very much for your financial support of the computer program that will operate for a minimum of one and a half years at the Dobromel Orphanage-Boarding School. After having more than 20 computers sit idle for more than a year, the children will now embark on a new adventure in learning. It is all because of your generous contributions that this has become a reality.

Your love, prayers, and financials support, our friends and partners, help us perform many projects to help children. Thank you very much!

Living my dream,

Sveta

As we enter 2013, we see change happening in Ukraine that will affect the children. The government is closing many of the orphanages, mainstreaming the children into regular schools. Our focus on health care, education, and clothing will remain our objective. Our ability to reach out to more children this year and next will depend upon people with hearts for the children. 

If God is nudging you to make a monthly commitment to help our children, please understand that $5 or more dollars a month will make a difference in the lives of our children.

As we work together to build a stronger Ukraine through caring for its children, we work together to build a stronger world! Thank you for taking an interest in our children who look to us for help.
 
Blessings of love and healing,

Mark and Sveta

Thursday, August 23, 2012

August 2012 Newsletter


Hello family and friends,


It has been hot recently, in the mid 90s. But, then again, it is summer. Sveta has coaxed me to swim in the sea a few times this summer. The water has had a cool temperature, just right for swimming. The ½-mile long beach has been packed with vacationers from Western Europe and Russia. The Illichevsk beach remains free, although it has become very commercialized. There are many ways to spend your money.

My focus this summer is to write articles on Sveta’s and my blog about the education needs of the children. My series begins with “What About Education? – Intro,” and, if you are on the Internet, you can find it in the second article, Wednesday July 11, on this page http://tinyurl.com/bqevdjv. With each article, I am building the foundation of environment and need of the children in Ukraine. This series will come to a conclusion soon, and will be followed with a series on Health Care and how MUCH is involved.

MUCH is not an organization created to educate the children of Ukraine. It is our intent to evaluate what is current, and be a catalyst for inspiration or change to create opportunity that will improve the options of the children. Here in Illichevsk, our Transportation Scholarship Program (TSP) does this. Our long-term goal is to alter society through education. Our focus is not to teach our thoughts and beliefs, but rather to encourage and challenge the children to continue on to higher education that is already waiting for them.

I believe that this will break the cycle of poverty, giving the teenagers a bigger picture of what is available for them to do with their lives. With a picture of something more than their past lives and how they were raised, these teens will not only have the opportunity for higher education, but will realize that there are people who care enough about their future to help them. Some of the teens who do want this are not able to afford the transportation to and from Odessa every day. That amount is about $2.50 a day for an hour of travel each way! Imagine that!

In Marganets, the staff and administration are committed to the 156 children in their orphanage. It is government-run, but this one is operated so much better than others in Ukraine are. Their focus is to challenge the children to find their highest abilities and excel. For some of the children, these areas are in computer or music and dance. MUCH believes that these classes are preparing the children for their futures in a bigger perspective, developing thought processing and new patterns of thinking, which were touched on in the June Newsletter.

A third course of study that MUCH supports in Marganets is provided by a local church. In the beginning, we asked them to meet with the children and teach about morality and self- respect, with a focus on prevention of drug and alcohol abuse. For children in an orphanage system, this can be the biggest influence on their lives. Taught by loving teachers, the children can develop character that will carry them through the difficult times that they will face in their futures.

MUCH has been influencing the lives of children in Ukraine in these ways for six years. Our desire is to expand our education programs and inspire the teachers to do more. The government is not likely to add to the budget, so MUCH sponsorship may be the only way to express to the teachers that we care about what they do.

Several months have passed since we met with the parents and their daughter, A., in their home. This time, while visiting the massage clinic and the doctor/masseuse Natasha B., Mark and I saw good results from A. Her parents give a lot of attention to the child. Four times a year A. is being treated in a children's multi-therapy clinic called "Golden Angel" in Odessa. She receives medical treatment and massage therapy, and during the summer, the parents bring A. daily to an Equine Therapy program near the town, where she rides a horse in a small walking circle.

Sveta's Journey

 

Contact with the horse gives A. many positive emotions, helps relax her spastic muscles, and builds tone in her legs. Contact with the horse warms up the muscles and joints of the legs and pelvis, and also develops coordination. The girl is very patient and she is accustomed to numerous procedures, training, and massage. Her parents are actively involved with the child at home. They use a special suit that holds the muscles of the extremities in the correct position. We reported on A. in the February Newsletter that she could not raise her head. During this visit, she is able to raise her head and hold it in a raised position for a count of 60 seconds or more. This is great progress.

D., an eight- and-a-half year old, is a very interesting and clever girl. She is an extraordinary child! When she learned that Mark would be at her massage treatment, and that he would be taking pictures of her, she carefully prepared for the meeting. She wore her best dress, jewelry, and her grandma braided her hair beautifully. D. met Mark about 4 years ago, and she loves him very much. When it came time to say goodbye, it was clear that D. did not want to part with Mark.

She has Cerebral Palsy, but she goes to a regular school and has almost no free time. She regularly receives massage treatments and visits a dance choreographer for lessons in stretching muscles. The stretching exercise is very hard work for her. Currently, D. is interested in working with beads. She showed us her work, a beautiful bracelet for her wrist. D. loves animals, especially horses and dreams of working with them in her future.

Two years ago, D. underwent surgery to lengthen the muscles in her left heal cord and her right hamstring, behind her knee. Before, she could stand only on her toes. After the operation, she is now able to stand with her foot almost entirely flat on the floor. She receives a single injection of a medication called Disport, to relieve spasticity of her leg muscles once or twice a year, depending on the results. It costs 1500 grevnya ($187.50) per dose for her. Currently, MUCH is not involved with the cost of this injection treatment.

It is very important when doctors and parents notice the child's deviation from the norm in infancy. Actions taken in time, especially before the child reaches the age of one year, can greatly alter the development of the baby. M. began receiving massage treatments when he was one month of age. He is now 1 year and 8 months. During this time, his muscle tone has been restored. His mother is delighted with the good results, and understands the importance of massage for him.

V. (right) has hemi-paresis, and he began to receive massage at the age of three months. Now he is two years and four months old. During this time, he has received massage treatments and also has good results.

Our hearts were saddened when we learned the story of this next boy. I. (below) has a very rare disease and has already suffered a complicated surgery to remove his colon. Mark and I visited him at home. I. is now a patient of our masseuse, Tanya. The doctor caring for I. has prescribed
massage as mandatory. He states that it is very necessary to receive massage as an important means to help restore the function of his body. He is a beautiful child!

Thanks for your help! You are sincere and good people. You are well aware of the complexity of situations and in the past have been ready to provide much needed assistance. Charity is one of the most important works in society. With your help, needy children receive timely assistance and can always count on your support. People involved in charity, by helping others, get moral satisfaction from their work.

Living my dream,

Sveta

You will be hearing more about our efforts toward education and health care as we enter the fall season. MUCH is made up of many different people. I am only one here in Ukraine who moves things forward. There are thirty-one people of Ukraine, in three cities and two villages, who are involved to some degree in making the work of MUCH happen. In America, the MUCH board of directors guides my financial decisions here in Ukraine, and the sponsors of MUCH make it possible to carry out the work that God guides me to do. Finally, but equally important, are those who lift us up in prayer in America and here in Ukraine. The children thank you all!

Blessings of love and healing,

Mark and Sveta